Clinical Registries: The Opportunity For The Nation
May 11th, 2011
In the early 1970s, the Cystic Fibrosis Foundation began tracking the health of patients with cystic fibrosis. What began as a modest data collection effort is today a comprehensive clinical registry of 26,000 patients. Caregivers and researchers use the registry to identify new trends in outcomes; recognize the most effective treatments; and design clinical trials... Read the rest of this entry »


