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Rachael Fleurence on Patient Engagement

April 3rd, 2013

In today’s Q and A on Patient Engagenment, we feature Rachael Fleurence, a Senior Scientist at PCORI where she leads the research prioritization initiative to help identify important patient and stakeholder generated questions and establish a rigorous research prioritization process to rank these questions. (Also, check out her recent blog post and follow the link to her February Health Affairs article here.)

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Getting Specific: Selecting Patient- And Stakeholder-Initiated Topics For PCORI Funding

October 19th, 2012

Every day, patients, caregivers and clinicians must make any number of complex health care decisions. They might have to choose between several options for preventing, diagnosing or treating a disease or condition. They might need to decide between doing something specific and not doing anything at all. And often, they make these decisions without the evidence or information that answers the questions that matter most to patients.

The Patient-Centered Outcomes Research Institute (PCORI) was established to address this problem by funding comparative clinical effectiveness research to help patients make better-informed health and health care decisions, taking full and meaningful account of the concerns they have about the issues they face. Based on these principles, we developed our National Priorities for Research and Research Agenda, which guides our decisions about the kinds of research to fund.

To do this most effectively, we have implemented two complementary but equally critical paths: a broad, “investigator-initiated” funding process and a more directed “patient- and stakeholder-initiated” path. Together, they will help us build a robust portfolio of patient-centered outcomes research that will address the unmet needs of patients, caregivers, clinicians and other health care stakeholders.

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