Learn more about Carol Levine

Carol Levine directs the United Hospital Fund’s Families and Health Care Project, which focuses on developing partnerships between health care professionals and family caregivers, especially during transitions in health care settings (www.nextstepincare.org). She has a BA from Cornell University (Phi Beta Kappa) and an MA from Columbia University in Public Law and Government. She was editor of the Hastings Center Report and is now a Hastings Center Fellow. In 1993 she was awarded a MacArthur Foundation Fellowship for her work in AIDS policy and ethics. She was named a WebMD Health Hero in 2007 and a Civic Ventures Purpose Prize Fellow in 2009. She was co-chair of the Fund’s Transitions in Care Quality Improvement Collaborative (TC-QuIC). She edited Always On Call: When Illness Turns Families into Caregivers (2nd ed., Vanderbilt University Press, 2004), and with Thomas H. Murray, co-edited The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals and Policy Maker (Johns Hopkins University Press, 2004). In 2014 she published two books: Living in the Land of Limbo: Fiction and Poetry about Caregiving (Vanderbilt University Press) and Planning for Long-Term Care for Dummies (Wiley).


Recent Posts by Carol Levine

Family Caregiving And Palliative Care: Closing The Policy Gap

Editor's note: This post is part of a periodic Health Affairs Blog series on palliative care, health policy, and health reform. The series features essays adapted from and drawing on an upcoming volume, Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the...

“In Sickness and in Health”: A New Report on Spousal Caregiving

“Typical” and “average” are words intended to draw an immediately recognizable picture of a population, trend, or statistical distribution. But sometimes these words conceal instead of clarify. Based on media reports and product ads, one might conclude that all family caregivers are women in...

Families Under Stress: Reflections On April’s Narrative Matters Essay On Dementia

Editor's note: This post responds to the April Narrative Matters essay by Gary Epstein-Lubow, a geriatric psychiatrist, which recounts the life-changing stress experienced by relatives who care for loved ones with dementia. Epstein-Lubow's essay is freely available to all readers, or you can...

Getting Transitions In Care Right: Two Agendas For Change

Big changes in health care make headlines. Except when they slip by unnoticed. A memorandum earlier this year from CMS’s Center for Clinical Standards and Quality/Survey & Certification Group to state survey agency directors fits this category. As if the agency’s title weren’t wordy...

September 3, 2013Hospitals, Medicaid and CHIP, Medicare

Your (Untrained And Scared) Family Member Will Set Up Your IV Now!

Time travel, both backward and forward, continues to be a favorite theme in popular culture. If we could travel back just 60 years or so, we would see a vastly different health care system, one geared to provide acute care, not chronic care, and one offering what today would be seen as...

November 2, 2012Long-term Services and Supports

The Year Of The Family Caregiver — In What Country?

President Obama has begun his campaign for re-election in 2012.  Several Republicans have declared their intention to consider the possibility of running.   Meanwhile, implementation of health care reform proceeds slowly, with threats of defunding and legal action scuttling alongside to keep...

April 21, 2011Payment Policy

Medicare Innovation: Whose Priorities, Whose Interests?

Editor’s Note: In addition to Carol Levine (photo and bio above), authors of this post include Eric Coleman, Professor in the Division of Health Care Policy and Research, University of Colorado Denver School of Medicine; and Mary Naylor, Director of the New Courtland Center for...

The Seattle ‘God Committee': A Cautionary Tale

As uncomfortable as it is for many Americans to accept, allocation issues are a permanent feature of our health care system, “reformed” or not.  Who should get the H1N1 flu vaccine first? In a flu pandemic or a biological disaster, who should be put on respirators and who should not?  These...

November 30, 2009Hospitals