‘I’m Willing To Try Anything’: Compassionate Use Access To Experimental Drugs And The Misguided Mission Of Right-To-Try Laws

Pharmaceutical companies, not the FDA, are the true gatekeepers for their proprietary products. Policymakers must take this into account and incentivize pharmaceutical companies to provide greater access to their products in development.

March 27, 2017

A Call To The Palliative Care Community For A Patient-Centered Response To Medical Aid In Dying

The palliative care community and medical establishment must embrace patients' desires for self-determination and autonomy by supporting medical aid in dying as a legitimate medical option for dying patients.

March 15, 2017

How Do We Protect Patients From False Promises In Right-To-Try Laws?

Legislation before Congress seeks to grant all terminally ill patients the “Right to Try” experimental therapies once approved alternatives have failed. In its current form, however, Right to Try may be more likely to hurt patients rather than help them.

March 14, 2017

Innovation In Serious Illness Care Payment: Progress To Date And Opportunities For The New Administration

Discern Health recently developed a framework of principles for payment models to promote the delivery of community-based, comprehensive, high-quality, affordable serious illness care. Here are some key opportunities for policymakers to continue progress toward high-value care for the seriously ill.

March 8, 2017

Misleading Metrics

Metrics are intended to promote quality. But if they measure the wrong thing or are easy to manipulate, there can be serious consequences.

February 21, 2017

How Can We Increase The Use Of Palliative Care In Medicare?

A community-based, interdisciplinary palliative care model that spans care settings is being evaluated in a CMMI demonstration project. It provides some early lessons on how alternative payment models for palliative care might be developed to increase its provision in Medicare.

February 13, 2017

For Seriously Ill Prisoners, Consider Evidence-Based Compassionate Release Policies

Common-sense improvements to compassionate release policies would improve the lives of thousands of Americans experiencing serious illness in federal prisons, reduce federal prison spending, and honor our criminal justice system's commitment to ensuring public safety.

February 6, 2017

How States Can Expand Access To Palliative Care

Given the states’ role in funding safety-net programs, as well as the fact that early signs indicate a push towards more privatization of Medicare and Medicaid, states should consider levers to expand local access to palliative care.

January 30, 2017

A New Health Affairs Blog Featured Topic: End of Life And Serious Illness

The series focuses on the challenges facing patients both young and old in the advanced stages of illness as well as those challenges confronting their caregivers, loved ones, and health care providers.

December 19, 2016

Why Now? Concerns About End-Of-Life Health Care Policy

While the recent focus on end-of-life care is partly rooted in concerns over costs, much of it reflects a desire to ensure that the care people receive is consistent with their preferences.

December 19, 2016